Tales of the Toot

'Cuz special needs kids need special mamas!

Tales of the Toot has moved…. February 12, 2010

Aiden's CrossHey Y’all!
You may have noticed that I’ve had no new posts this week…. (I hope you’ve noticed!)… I have been working on moving Tales of the Toot to it’s very own domain and am finally up and running over at the new site!!

Please go over to: http://www.talesofthetoot.com  and reconnect/follow/subscribe over there. I love all my bloggy friends and don’t want to lose anyone in the transition.

Now that all the hard work of moving content, figuring out codes, plug-ins and widgets is done, I am excited to return to regular posting as well as visiting your blogs!

Come see me @ http://talesofthetoot.com

Thanks so much!

Christy

 

and the winner is….. February 1, 2010

Check your emails ladies to see if you have won the Sterling Silver “Aiden’s Cross” Pendant!!!

Thanks so much to all of you who entered, and a special shout-out to all my JJB Mama’s who have supported me and Aiden with love and prayers since Day 1 of this diagnosis.

Spread the word about AHUS. Awareness is key. We need a cure!!

 

Sterling Silver “Aiden’s Cross” Pendant Giveaway!!! January 25, 2010

"Aiden's Cross" designed by Sterling Grace Jewelry

I am so happy announce my very first giveaway!! This giveaway is awesome for several reasons: 

  1.  A beautiful sterling silver pendant that retails for $58.
  2.   The pendant, “Aiden’s Cross” is a specialty item designed for and named after my son, Aiden to help promote awareness of the rare medical disorder he suffers from: AHUS (Atypical Hemolytic Uremic Syndrome).
  3.  Proceeds from the sale of “Aiden’s Cross” are distributed to the University of Iowa to help fund research for AHUS.

For more information about Aiden and AHUS visit the Aiden’s Cross Website. You can buy your Aiden’s Cross at the Sterling Grace Jewelry Website

 

Entering to win is easy! 

  • First, become a Tales of the Toot follower by email and then visit www.aidenscross.com . Leave me a comment (on this blog: Tales of the Toot) telling me how you would help spread the word about this ultra-rare disorder and/or what you learned about AHUS. If you are already a follower, let me know that in your comment! 🙂 This is required to enter-1 entry.

Extra Entries 

  • Follow me on Twitter @AidensCross. (Please leave a comment letting me know you are a new follower or if you are already following). – 1 entry
  • Tweet about this giveaway. – 2 entries/1 Tweet per day max credit
  • Follow Tales of the Toot on FB’s Networked Blogs. Leave me a separate comment letting me know you did this. -1 entry
  • Visit the Sterling Grace Website and let me know what your favorite piece is. -1 entry
  • Post my giveaway on your blog. (Leave me a comment with the link) -3 entries!!
  • Visit one other post at Tales of the Toot and leave a comment. -1 entry

 To receive credit for all entries please leave a separate comment/associated link for each task you complete.  

The winner will be selected by Random.org on Monday, February 1st at 2:00p.m. CST and will be notifed by email. If you are the winner, you will be given 48 hours to claim your prize before a new winner is selected. 

Thanks so much!  

Good luck! 

~Christy~

 

When Your Nightmare Becomes Your Reality January 13, 2010

Dramatic title, huh? Maybe not- if it’s YOUR truth. As moms, we hope, dream, wish, and pray for nothing but health and happiness for our kids. From the time they are in the womb we are dreaming big for them. We are tenacious in our love, and fierce in our instinct to protect them at all costs. Is it any wonder that we are then shattered when we are told they are sick? Can we help but feel that there is no hope for all the dreams we had for them?

Let me tell you something, mama. Don’t stop dreaming.

When my sweet little boy was diagnosed with an ultra-rare disorder, I felt robbed. Robbed of the ability to kiss all the boo-boos away; robbed of a “normal” life for him and for me; robbed of the dreams that I had for my little boy. I cannot tell you how many nights I literally lay on the floor in his room, sobbing and praying and asking “Why?” And then I realized…

If I stop dreaming for him…I am robbing him….I am robbing myself. So, I looked around at the blessings, the joys, the wonders of all that he is. And, I thanked God for every good day we had and made plans to have as many of those good days as possible.

It’s not easy having a child with special needs. We don’t fall into the “normal” category, but we make it work. We’re okay with being “special”.  Today, I dream of a cure, a holiday season without a hospitalization, a transplant and a life without a dialysis machine. In the meantime: we take family trips, we play, we LIVE and we DREAM.

We have vowed to make everyday count. We will not let this disease define our family, our son, or how we live – and we will never stop dreaming.

 

3 people you meet in the hospital… January 7, 2010

We have spent way more than our fair share of time in the hospital over the past 2 years. Although living in the hospital is NOT my preference, it has allowed us to encounter some of the most wonderful people. Here are the 3 people you meet in the hospital.

1) The Angel — aka the nurse. This is not any or every nurse, but the one who reaches out to you. The one who loves and takes care of your child as if they were his/her own. The one that cares not only for your child, but for you. Some of the wisest words ever spoken to me were from the mouths of these angels. They are truly heaven-sent and I thank God for them. (We love you Grandma A and Debbie!)

2) The Other Mother – This is the one that has been there as long (or longer) than you. The one who REALLY knows what it’s like to live with a sick child…the one that you can hear say “Just trust God” and believe that they know what they are talking about. The only one that can get away with telling you “It will be okay”…because they know it will be okay, they have been there, they are there and they are invaluable as a source of inspiration and comfort. (Much love to you, Heidi!)

3)The Dr – I pray that you are as fortunate as we have been. We are blessed to have been surrounded by doctors who not only are excellent at what they do, but have a real heart and love for the kids they treat. Our doctors have been encouraging while remaining honest; have never given us false hope but have never given up and have laughed and cried with us. They love Aiden, they love what they do…and it shows. (Many thanks to the ICU staff of Medical City Children’s Hospital in Dallas, the surgeons and the ARCH group…and of course Dr. Q )

If we have learned anything, it is that God is always present. On days when I just couldn’t quite feel his presence and didn’t quite know what to say God always had someone ready to minister to me in the way that I needed. I thank Him for that and feel so very blessed to call the “people you meet in the hospital” friends and family.