Tales of the Toot

'Cuz special needs kids need special mamas!

Tales of the Toot has moved…. February 12, 2010

Aiden's CrossHey Y’all!
You may have noticed that I’ve had no new posts this week…. (I hope you’ve noticed!)… I have been working on moving Tales of the Toot to it’s very own domain and am finally up and running over at the new site!!

Please go over to: http://www.talesofthetoot.com  and reconnect/follow/subscribe over there. I love all my bloggy friends and don’t want to lose anyone in the transition.

Now that all the hard work of moving content, figuring out codes, plug-ins and widgets is done, I am excited to return to regular posting as well as visiting your blogs!

Come see me @ http://talesofthetoot.com

Thanks so much!

Christy

 

and the winner is….. February 1, 2010

Check your emails ladies to see if you have won the Sterling Silver “Aiden’s Cross” Pendant!!!

Thanks so much to all of you who entered, and a special shout-out to all my JJB Mama’s who have supported me and Aiden with love and prayers since Day 1 of this diagnosis.

Spread the word about AHUS. Awareness is key. We need a cure!!

 

Sterling Silver “Aiden’s Cross” Pendant Giveaway!!! January 25, 2010

"Aiden's Cross" designed by Sterling Grace Jewelry

I am so happy announce my very first giveaway!! This giveaway is awesome for several reasons: 

  1.  A beautiful sterling silver pendant that retails for $58.
  2.   The pendant, “Aiden’s Cross” is a specialty item designed for and named after my son, Aiden to help promote awareness of the rare medical disorder he suffers from: AHUS (Atypical Hemolytic Uremic Syndrome).
  3.  Proceeds from the sale of “Aiden’s Cross” are distributed to the University of Iowa to help fund research for AHUS.

For more information about Aiden and AHUS visit the Aiden’s Cross Website. You can buy your Aiden’s Cross at the Sterling Grace Jewelry Website

 

Entering to win is easy! 

  • First, become a Tales of the Toot follower by email and then visit www.aidenscross.com . Leave me a comment (on this blog: Tales of the Toot) telling me how you would help spread the word about this ultra-rare disorder and/or what you learned about AHUS. If you are already a follower, let me know that in your comment! 🙂 This is required to enter-1 entry.

Extra Entries 

  • Follow me on Twitter @AidensCross. (Please leave a comment letting me know you are a new follower or if you are already following). – 1 entry
  • Tweet about this giveaway. – 2 entries/1 Tweet per day max credit
  • Follow Tales of the Toot on FB’s Networked Blogs. Leave me a separate comment letting me know you did this. -1 entry
  • Visit the Sterling Grace Website and let me know what your favorite piece is. -1 entry
  • Post my giveaway on your blog. (Leave me a comment with the link) -3 entries!!
  • Visit one other post at Tales of the Toot and leave a comment. -1 entry

 To receive credit for all entries please leave a separate comment/associated link for each task you complete.  

The winner will be selected by Random.org on Monday, February 1st at 2:00p.m. CST and will be notifed by email. If you are the winner, you will be given 48 hours to claim your prize before a new winner is selected. 

Thanks so much!  

Good luck! 

~Christy~

 

3 people you meet in the hospital… January 7, 2010

We have spent way more than our fair share of time in the hospital over the past 2 years. Although living in the hospital is NOT my preference, it has allowed us to encounter some of the most wonderful people. Here are the 3 people you meet in the hospital.

1) The Angel — aka the nurse. This is not any or every nurse, but the one who reaches out to you. The one who loves and takes care of your child as if they were his/her own. The one that cares not only for your child, but for you. Some of the wisest words ever spoken to me were from the mouths of these angels. They are truly heaven-sent and I thank God for them. (We love you Grandma A and Debbie!)

2) The Other Mother – This is the one that has been there as long (or longer) than you. The one who REALLY knows what it’s like to live with a sick child…the one that you can hear say “Just trust God” and believe that they know what they are talking about. The only one that can get away with telling you “It will be okay”…because they know it will be okay, they have been there, they are there and they are invaluable as a source of inspiration and comfort. (Much love to you, Heidi!)

3)The Dr – I pray that you are as fortunate as we have been. We are blessed to have been surrounded by doctors who not only are excellent at what they do, but have a real heart and love for the kids they treat. Our doctors have been encouraging while remaining honest; have never given us false hope but have never given up and have laughed and cried with us. They love Aiden, they love what they do…and it shows. (Many thanks to the ICU staff of Medical City Children’s Hospital in Dallas, the surgeons and the ARCH group…and of course Dr. Q )

If we have learned anything, it is that God is always present. On days when I just couldn’t quite feel his presence and didn’t quite know what to say God always had someone ready to minister to me in the way that I needed. I thank Him for that and feel so very blessed to call the “people you meet in the hospital” friends and family.

 

December 31, 2009

Happy New Year!!

Praying blessings for each of you for the new year!

We have been so blessed in so many ways this holiday season. First off, it was Aiden’s first full Holiday season spent at home with no hospital stays! We have so enjoyed being home and enjoying friends and family this holiday season! 🙂

Many of you know that I have a cousin who was critically ill. The doctors gave absolutely no hope and were actually waiting on him to pass. He was in severe liver and kidney failure and they believed that his brain was effected and had possibly already herniated from increased pressures. The DNR had been signed and transplant teams called to harvest his heart upon his passing…..and then a miracle happened. He opened his eyes, began following commands and now 4 days later is sitting up in bed, playing his IPOD and talking! It is truly a miracle–no other explanation. Dr’s and medical staff from surrounding hospitals in ATX have been coming to see this miracle for themselves. To God be ALL the GlORY!! I know that God has a great plan for Alex and cannot wait to see what he will do with his new chance at life!

In 2010 I will be adding blogs on at least a weekly basis and will be having periodic contests for give-aways, etc. Please join our mailing list for updates!

Have a wonderful but safe New Year’s Eve!!!

Christy

 

A Place for Mama… December 11, 2009

….welcome back to where it all started….. Tales of the Toot was my very first blogging experience and it was such an important outlet for me as well as a great way to keep others informed of what was going on with Aiden (our little Toot) while we were spending so much time in the hospital.

 But I have missed having somewhere to share my musings, my thoughts, my experiences. I try to keep Aiden’s site (www.aidenscross.com) and his associated blog, pretty much just about Aiden and keep my personal thoughts/feelings out of it. I miss having that! So here I am!! Back to blog as I wish and decided to keep the name: Tales of the Toot. As much of my day revolves around my little man I am sure there will be many tales of the Tootster here, but this will also be my place: to share my thoughts, prayers, feelings, opinions, etc. 

Of course we always think we have important things to share…but I truly believe God has given me Aiden, and the trials in my life for a reason. If not to share, to make a difference somewhere for some other mama, then what for? Surely God can and will make good of everything. Even the incurable and “ultra” rare disease can be used for good.

I have a heart for mothers. All mothers, but especially those dealing with an ill child. I also have a heart for the mother-less. I know what it is like to feel like you have no one to mother you; what it’s like to be afraid that you will not know how to mother as a result of your upbringing. I also know that God has given us everything we need to overcome those fears and I know first hand that God provides us with “spiritual” mothers when our natural mothers will not or cannot fullfil their roles. I pray that one day God will use me as a spiritual mother to someone who needs it and I thank Him for my own spiritual family. They were and are so very important to me.

All of that to say this….I’m not sure exactly where this blog may go. But it is mine! For those of you interested only in Toot news, please continue to follow his progress at www.aidenscross.com. There will be a great mix of Aiden here but also personal stuff on me and my journey as his mother.

Can’t wait to see where this blog takes us……

In Him,

Christy

 

A Good Week! January 15, 2009

Filed under: AHUS,Atypical HUS,kidney failure in children — christycross77 @ 9:55 pm

YAY!! It’s been a great week for Aiden and for us too! First off, Aiden’s bloodwork looked absolutely wonderful on Monday evening when we checked into the hospital. His blood count was actually in normal range–something I have NEVER seen, even before his diagnosis! His electrolytes looked great and his kidney function tests, while not normal, were an improvement from last week. Maybe pheresis twice per week is going to do the trick?! I’m praying for another great lab report when we check in this coming Monday. Aiden is running around having a great time UNcleaning the house as I desperately try to clean faster than he UNcleans…ha, guess who’s winning that race?

Aiden and I are meeting with Sterling Grace owner, Deborah Harter tomorrow to make more plans for “Aiden’s Cross” She has already completed the design and I cannot wait to see it! I am absolutely thrilled that she has not only agreed to do this but has taken it on whole-heartedly and is working through her many, many contacts to spread the awareness about Aiden and Atypical HUS. She is truly a God-send. More on that after our meeting tomorrow!

I am encouraged. For the past week and a half I’ve felt the peace of God finally return to me and I can see a change in David, too. I still don’t understand the why’s, but I truly believe that God has a plan. Thanks to whoever it was who prayed specifically for that “peace that passes understanding”–Ha, I know YOU are out there–just don’t know which one of you it is. It is now our goal to not only live each day to the fullest and with Aiden-like zeal but to spread the word about Atypical HUS to all who will listen. Look out Oprah–here we come! 😉

A very special thanks to ALL of our wonderful friends and as always to Mimi! We have a wealth of love and support from great friends and it lifts us up to know you care.

Please continue to be in prayer for more good news for Aiden and for the “Aiden’s Cross” project. Also–please say a special prayer for the family of Caden White (www.cadenwhite.com) and for the family of Mellissa Ybarra and specifically, Ian their sweet son.

Love to all,

Christy, David and Toot