Tales of the Toot

'Cuz special needs kids need special mamas!

Christmas Eve December 24, 2008

Filed under: AHUS,Atypical HUS,kidney failure in children — christycross77 @ 4:37 pm

Just a quick post to let everyone know that the surgery went well when they finally got around to doing it. There was some mix-up with the insurance and they ended up cancelling us when we got here, then admitting us and adding us in as an emergency case…it was so stupid and they didn’t even take Aiden into surgery until 10:15 last night. (which means he was NPO for 28 hours! poor baby!!) We were not happy campers but are so glad that the surgery went well. His new line is in place and they are starting pheresis now, so we will see if it looks like it will work better than the old catheter did. The pheresis will last about 3 hours and we have to finish his dialysis…(he didn’t get put on until 2 this morning after all the delays)…so hopefully we will get discharged and be on our way home sometime around 3 today. Thanks so much for the prayers and support. I hope everyone has a very Merry Christmas tomorrow.

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